Getting Lost with a Guide: Dementia and Mentorship

It is sometimes unimaginable where some people continue to find the energy to remain upright inwardly despite mental breakdown and to continually seek new balances. This book makes room and space for that struggle.

But it is also about the work of everyone who deals with a person with dementia and about the questions that arise, whether we like it or not: when should we intervene? what can you let happen? what risks can we take? to what extent should we take into account the person with dementia's own will? what do we allow and where and when do we intervene?

And then this question also arises: who decides here, from where and with what right? Ultimately, it is about who, in the name of the person with dementia, is the discussion partner when decisions have to be made. The book advocates a declaration of intent from everyone about the representation of interests in the case of dementia: the mentorship.

Getting Lost with a Guide also contains poems about dementia by Johan Van Oers, poet and employee of De Bijster in Essen.